Children With Brain Injury Benefit From Tutor System

Drs. JA Langlois ,W.Rutland-Brown etal of the Centers for Disease Control and Prevention and National Center for Injury Prevention and Control writing about a
population-based comparison of clinical and outcome characteristics of young children with serious inflicted and noninflicted traumatic brain injury.
Traumatic brain injury (TBI) is the leading cause of disability and death in children and adolescents in the U.S. According to the Centers for Disease Control and Prevention The two age groups at greatest risk for TBI are age 0-4 and 15-19.
Among those ages 0 to 19, each year an average of: 62,000 children sustain brain injuries requiring hospitalization as a result of motor vehicle crashes, falls, sports injuries, physical abuse and other causes
564,000 children are seen in hospital emergency departments for TBI and released.
Among children ages 0 to 14 years, TBI results in an estimated in:
2,685 deaths
37,000 hospitalizations
435,000 emergency department visits
In a report to Congress, Traumatic Brain Injury in the United States: Emergency Department Visits, Hospitalizations, and Deaths, the Centers for Disease Control and Prevention notes falls are the leading cause of TBI for children age 0-4. Approximately 1,300 U.S. children experience severe or fatal head trauma from child abuse every year.
Any impairments may occur to different degrees. The nature of the injury and its consequences can range from mild to severe, and the course of recovery is very difficult to predict for any given child. With early diagnosis and ongoing therapeutic intervention, the severity of these symptoms may decrease in varying degrees. Symptoms can vary greatly depending on the extent and location of the brain injury. Impairments in one or more areas (such as cognitive functioning, physical abilities, communication, or social/behavioral disruption) are common.
What makes a brain injury in children different?
While the symptoms of a brain injury in children are similar to the symptoms experienced by adults, the functional impact can be very different. Children are not little adults. The brain of a child is continuing to develop. The assumption used to be a child with a brain injury would recover better than an adult because there was more “plasticity” in a younger brain. More recent research has shown that this is not the case. A brain injury actually has a more devastating impact on a child than an injury of the same severity has on a mature adult. The cognitive impairments of children may not be immediately obvious after the injury but may become apparent as the child gets older and faces increased cognitive and social expectations for new learning and more complex, socially appropriate behavior. These delayed effects can create lifetime challenges for living and learning for children, their families, schools and communities. Some children may have lifelong physical challenges. However, the greatest challenges many children with brain injury face are changes in their abilities to think and learn and to develop socially appropriate behaviors.
Common deficits after brain injury include difficulty in processing information, impaired judgment and reasoning. When an adult is injured, these deficits can become apparent in the months following the injury. For a child, it may be years before the deficits from the injury become apparent. An example of this is described in the story of “Betsy.”
Betsy was an active, inquisitive 6 year old girl. She was involved in a motor vehicle accident and sustained a moderate brain injury. She was treated at the hospital and discharged to home with outpatient therapies to continue her recovery. She missed a little over a month of school as she recovered. She was able to return to her first grade class, and with help from teachers and her parents, was able to complete the school year with average grades. She needed help in learning new things, but was able to remember them with extra repetitions.
Betsy continued in school, getting average or above average grades. It wasn’t until she reached fifth grade that her grades started to decline. Teachers and her parents did not understand the change. She went to school, she tried to do her homework every night. She complained that she just didn’t understand the schoolwork anymore. She became more irritable and argued with the teachers at times. No one thought to connect the brain injury years ago with her current issues.
Betsy was experiencing the long term effects of brain injury in children Her schoolwork increased in complexity, and required more sophisticated problem solving. The areas of the brain responsible for those functions were injured in the accident. Until now, those skills of abstract reasoning and more complex problem solving were not expected to be present. It was only when Betsy “grew into her injury” that her deficits became more readily apparent.
Fortunately, the mom was able to find her local Brain Injury Association and ask them about why Betsy was having trouble now. Information about the “neurocognitive stall”after a brain injury was sent to her, and she was connected with a professional that had experience working with children with brain injury. It will be a longer road to recover from her brain injury than anyone originally imagined, but Betsy, now connected with the right resources, has a much better chance of meeting the challenges of her brain injury.
When children with TBI return to school, their educational and emotional needs are often very different than before the injury. Their disability has happened suddenly and traumatically. They can often remember how they were before the brain injury. This can bring on many emotional and social changes. The child’s family, friends and teachers also recall what the child was like before the injury and may have adjusting their expectations of the child.
It is extremely important to plan carefully for the child’s return to school. Parents will want to find out ahead of time about special education services offered in their community. This information is usually available from the school’s principal or special education teacher. The school will need to evaluate the child thoroughly. This evaluation will let the school and parents know what the student’s educational needs are. The school and parents will then develop an Individualized Education Program (IEP) that addresses those educational needs.
Remember the IEP is a flexible plan. It can be changed as the parents, the school and the student learn more about what the student needs at school.
Learn about TBI. The more you know, the more you can help yourself and your child. See the list of resources and organizations below.
Work with the medical team to understand your child’s injury and treatment plan. Don’t be shy about asking questions. Tell them what you know or think. Make suggestions.
Keep track of your child’s treatment. A 3-ring binder or a box can help you store this history. As your child recovers, you may meet with many doctors, nurses and others. Write down what they say. Put any paperwork they give you in the notebook or keep it in the box. If you are asked to share your paperwork with someone else, make a copy. Don’t give away your original.
Talk to other parents whose children have sustained a brain injury. There are parent groups all over the U.S. Parents can share practical advice and emotional support. Check with your local Brain Injury Association to find parent groups near you.
College or any type of post secondary education for people with brain injury used to be considered an “unrealistic expectation” of life after brain injury. However, there are more students with brain injury investigating and attending college. The Brain Injury Association’s National Brain Injury Information Center notes that inquiries about college options for students with brain injuries has significantly increased over the last decade. There are now a range of resources available to families to help them work through the decision making process.
Concussion in children is common. Parents often ask, “When it is safe for a child to return to play or other activities?” and “How can I help my child recover from a concussion?”
Infants, Toddlers and Preschool Children
Very young children (i.e. infants, toddlers, and preschoolers) frequently sustain bumps and bruises to their heads from a host of mechanisms including falls (down stairs or from heights such as counter tops or beds), direct impacts (e.g. getting hit in the head with a ball), motor vehicle crashes, tricycle/bike accidents or child abuse.
Sometimes these events can be significant enough to result in a concussion. Deciding whether a child who has hit his or her head needs an immediate concussion assessment can be difficult. Young children may have the same concussion symptoms as older children, but they do not express them in the same way. For example, young children cannot explain a feeling of nausea or amnesia or even describe where they hurt. Parents and physicians should keep this in mind when considring the presence of concussion symptoms listed below. When in doubt, refer a child for immediate evaluation. Primary care physicians (PCPs) should ask caregivers about all “bumps on the head” and should consider referring a child with a “bump on the head” to the emergency department if they suspect a concussion.
Young children may also sustain mild to severe TBIs from abuse.
Approximately 1,400 cases of abusive TBI (including concussions) occur in the U.S. each year.
Injuries resulting from abusive TBI and other types of child maltreatment are often unrecognized or underreported.
Recognition of abusive TBI in young children is critical. If children are returned to a violent home, they are at very high risk of being hurt again or killed.
In any young child with injury to the head, it is imperative to assess whether the history provided for the injury is developmentally appropriate for a child that age. If not, it is important to consider child abuse in the differential diagnosis.
In some cases of abuse, caretakers do not report a history of any trauma either because (a) they do not know that there has been trauma because it is being inflicted by someone else without their knowledge or (b) because they don’t want to tell. As a result, if an infant or young child presents with the signs and symptoms listed above, it is important to consider the possibility of abusive TBI even in the absence of a history of trauma.
Seizures
Dizziness or confusion
Change in personality
Change in nursing or eating habits
Becoming upset easily or increased temper tantrums
Sad or lethargic mood
Lack of interest in favorite toys
Source: Centers for Disease Control and Prevention’s Toolkit for Physicians
To reduce the risk of sustaining a TBI, individuals should:
Wear a seat belt every time they drive or ride in a motor vehicle.
Buckle children the car using a child safety seat, booster seat, or seat belt according to the child’s height, weight and age. Children should start using a booster seat when they outgrow their child safety seats, usually when they weigh about 40 pounds. Children should continue to ride in a booster seat until the lap/shoulder belts in the car fit properly, typically when they are approximately 4’9″ tall.
Wear a helmet and make sure children wear helmets that are fitted properly.
Make sure playground surfaces are made of shock-absorbing materials, such as hardwood mulch or sand, and are maintained to an appropriate depth.
Use the right protective equipment and make sure it is maintained properly.
Make living areas safer for children by:
Installing window guards to keep young children from falling out of open windows;
Using safety gates at the top and bottom of stairs when young children are around;
Keeping stairs clear of clutter;
Securing rugs and using rubber mats in bathtubs; and
Not allowing children to play on fire escapes or on other unsafe platforms.
Make sure playground surfaces are made of shock-absorbing materials, such as hardwood mulch or sand, and are maintained to an appropriate depth.
The newly developed Tutor system has been designed for children as well as adults who suffer from brain injury.
The Tutor system, consisting of the HandTutor, ArmTutor, LegTutor and 3DTutor, has been developed to allow for functional rehabilitation of the whole body including the upper and lower extremity. The system consists of ergonomic wearable devices and dedicated rehabilitation software that provide patient instructions and feedback to encourage intensive massed controlled exercise practice. The Tutor system allows for controlled exercise of multijoints within the normal movement pattern which prevents the development of undesired and compensatory joint movement and ensures better performance of functional tasks. Additional features of the Tutor system include quantitative evaluation, objective follow up and tele-rehabilitation.
The new medical devices are available through the use of telerehabilitation and are FDA and CE certified.